Holy moly, I give up. Why is it, just when you think things are going good, something happens to burst the bubble?
The blog post I planned to write last week was to say good-bye to “A day in the life with RA” titles. Yes indeed, it felt so great that symptoms were at an all-time low. I decided that I would not focus on RA any longer in blog posts, in fact, I made the declaration to not even think or talk about RA. I would seal my lips and never utter another word on the topic.
But. Those thoughts quickly vanished. It started on Thursday evening when I suddenly realized that my eyes felt very scratchy and bothered by light.
In the morning, I called the optometrist and went to her office right away to get my eyes checked. The exam showed they were extremely dry and the tear glands were somewhat clogged. The optometrist indicated that “dry eye” is one of the symptoms of RA as well as with other autoimmune disease conditions. “Oh joy”, I thought.
I left the office with instructions and lubricating drops.
In addition to the dry eye, my throat was extremely dry and the inflammation level was up significantly in my feet and ankles. Getting around was tougher than normal. I thought back to what I had to eat the previous day. Hmm, that’s the day I decided to try an omelet. It had been about three months since I’ve eaten eggs. Maybe that accounts for the flare-up, I reckoned.
Over the weekend, the inflammation in my feet and ankles seemed to subside a bit, I think. However, who knows why, but Monday brought increased inflammation again.
Today was the kicker though. Today, Miss Hop Along was escorted arm in arm by two of the tenants who live in my building after they saw me inching my way from the parking lot after getting out of my car.
Hmm, I thought back over my diet of the last few days and wondered if it was the pecans in the gluten, dairy, egg and sugar-free muffins I’ve been eating. Maybe I’m sensitive to nuts. Maybe I am a nut.
Or, maybe the increase in symptoms is due to the fish oil supplement I began taking recently because it’s recommended to reduce inflammation.
I just don’t know. And, quite frankly, this is getting ridiculous.
I’m at the point where I ask myself, “What do I do now?”.
In my last post three weeks ago, I mentioned a much improved situation with test results to back it up (click here to read).
Now, I feel as though in reality, the dietary changes did nothing. Could it be that my body is reacting finally to the gradual decrease in prednisone by becoming more inflammed? Who can really say for sure why my symptoms improved and now seem to show little improvement.
So, do I scrap it all or do I keep going?
I can’t let my rheumatologist hear about this setback. I can see the glimmer in her eye as she says, “So, are you ready to try the new RA drug I recommended to you way back in September? You know, the one that is a IL-6 receptor inhibitor and is given intravenously once a month.”
No, we can’t let her know about this situation. We have to find another answer.
Sometimes I wonder why it seems to be so difficult to get well. Then, I remember.
I have access to a plethora of pharmaceuticals at a cost of $2 per prescription. Some of the RA medications cost upwards of $1,700. per month, but in my case, the government pays the bill. Thank you, government.
But here’s the thing, I view pharmaceuticals as a win-lose scenario, where the patient is the loser. I prefer the notion that the body will heal itself, once it is given the correct environment to do so.
Unfortunately, the medical system I’m under does not adhere to the; body heal thyself notion, nor, will it tolerate freedom of choice. Sure the government will fork over $1,700 per month for pharmaceuticals, but it won’t cough up a nickel for non-pharmaceutical treatment.
I guess, I have to keep going to find the correct environment for my body to heal itself and forget about trying to figure out why this flare-up is happening.
I need to keep focused on the goal: Make the best of each day no matter what seems to be going on in the moment.
You can do it, Marianne!